Parents Detained in Moscow Over Drug Protest

Parents from Chelyabinsk were detained in Moscow after holding a protest on Red Square demanding access to the original drug 'Spinraza' for their daughters with spinal muscular atrophy, following a court ruling that rejected forced treatment with a generic alternative.

Consensus

• The parents of two 11-year-old twin girls from Chelyabinsk were detained in Moscow.
• They held a protest on Red Square demanding the original drug 'Spinraza' instead of a Russian generic for their daughters' spinal muscular atrophy.
• The daughters had previously been treated with the original 'Spinraza' and showed no complications.
• After switching to the Russian generic, the girls experienced regression and health deterioration.
• The parents refused the generic treatment, leading to a court case initiated by a polyclinic seeking forced treatment.
• A court ruled the mother's refusal unlawful but did not order immediate forced treatment.
• The parents were detained after photographing their wife during the protest and later released after document checks.
• The regional Ministry of Health stated that a medical examination of the children was scheduled for September 7.
• The situation remains under the personal control of the Minister of Health of Chelyabinsk Oblast.

Points of divergence

• The parents were detained on September 4, and the wife was taken to the police station with her husband. — tg_astrapress
• The parents were detained in 2025, and the court ruling was not enforced by officials. — tg_govorit_nemoskva
• The head of the Investigative Committee, Alexander Bastykin, ordered an investigation into the situation. — tg_astrapress
• The father, Dmitry Bakhтин, from Yekaterinburg, previously participated in similar protests. — tg_govorit_nemoskva

Coverage (2 sources)

• In Moscow, a couple from Chelyabinsk was detained for standing in a picket on Red Square demanding that Putin ensure o... — ASTRA
• «Save My Children». Parents from Chelyabinsk Region Detained in Moscow: They Demanded Medication for Their Children — Говорит НеМосква

Key entities

• Moscow
• Chelyabinsk
• Chelyabinsk Oblast
• Red Square
• Putin
• Potehin Family
• Media
• SMA
• Ira
• Mgorsk

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